Journal publications

Smith SE, Chowdhury MK, Doherty M, Morgan DD. Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review. Palliat Med. 2022 Nov 25:2692163221136896. doi: 10.1177/02692163221136896

Devery K, Winsall M, Rawlings D. A qualitative study exploring challenges and solutions to negotiating goals of care at the end of life in hospital settings. Int J Qual Health Care. 2022 Nov 23;34(4):mzac089. doi:10.1093/intqhc/mzac089

Marston C, Morgan DD, Philip J, Agar M. Supporting Carers as Patients Move between Hospital and Home: A Systematic Review of Interventions to Support These Transitions in Care. [published online ahead of print, 2022 Oct 13]. J Palliat Med. 2022;10.1089/jpm.2022.0221. doi:10.1089/jpm.2022.0221

Belperio I, Devery K, Morgan DD, Rawlings D, Raghavendra P, Walker R. Health and disability care providers' experiences and perspectives on end-of-life care needs of individuals with long-standing physical disability: A qualitative interview study. [published online ahead of print, 2022 Oct 20]. Palliat Med. 2022;2692163221128702. doi:10.1177/02692163221128702

Rawlings D, Miller-Lewis L, Tieman J, Swetenham K. An international survey of Death Doula training organisations: The views of those driving Death Doula training and role enactment. Palliative Care and Social Practice. 2022 Sep 12;16:1–12. doi: 10.1177/26323524221123344

Devery K, Yin H, Rawlings K. End-of-Life Essentials education modules: a quality and safety initiative to improve health professionals end-of-life care knowledge, skills, attitude and confidence. BMJ Open Quality. 2022 Sep;11:e001925. doi: 10.1136/bmjoq-2022-001925

van Gaans D, Erny-Albrecht K, Tieman J. Palliative Care Within the Primary Health Care Setting in Australia: A Scoping Review. Public Health Rev. 2022 Sep 06;43:1604856. doi: 10.3389/phrs.2022.1604856

Damarell RA, Morgan DD, Tieman JJ, Senior T. Managing multimorbidity: a qualitative study of the Australian general practitioner experience. Fam Pract. 2022 Sep 5:cmac096. doi: 10.1093/fampra/cmac096

Wilton-Harding B, Weber N, Windsor TD. Awareness of age-related gains and losses as moderators of daily stress reactivity in middle- and older-adulthood. Front Psychiatry. 2022 Aug 26;13:929657. doi: 10.3389/fpsyt.2022.929657

Boschen K, Phelan C, Lawn S. NDIS Participants with Psychosocial Disabilities and Life-Limiting Diagnoses: A Scoping Review. Int. J. Environ. Res. Public Health. 2022 Aug 16,19(16):10144. https://doi.org/10.3390/ijerph191610144.

Javanparast S, Anaf J, Tieman J. Equity consideration in palliative care policies, programs, and evaluation: an analysis of selected federal and South Australian documents. BMC Palliat Care. 2022 Jun 16;21(1):109. doi: 10.1186/s12904-022-00997-2. 

Marco DJ, Thomas K, Ivynian S, Wilding H, Parker D, Tieman J, Hudson P. Family carer needs in advanced disease: systematic review of reviews. BMJ Support Palliat Care. 2022 Jun;12(2):132-141. doi: 10.1136/bmjspcare-2021-003299.

Morgan DD, Willis E, Sweet K, Roe P, Rabaçal J, Currow DC. The Complexities of Prescribing Assistive Equipment at the End of Life—Patient and Caregivers’ Perspectives. Healthcare [Internet]. 2022 May 29;10(6):1005. Available from: http://dx.doi.org/10.3390/healthcare10061005

Rowley G, Tieman J, Jones K. Steps towards equitable care: creating webpages to highlight diversity for Australia’s aged care and end of life care workforce. Aust J Prim Health. 2022 May 20. doi: 10.1071/PY21084. 

Kochovska S, Currow D, Chang S, Johnson M, Ferreira D, Morgan D, Olsson M, Ekström M. Persisting breathlessness and activities reduced or ceased: a population study in older men. BMJ Open Respir Res. 2022 May;9(1):e001168. doi: 10.1136/bmjresp-2021-001168. PMID: 35606021; PMCID: PMC9125752.

Jessop S, Phelan C. Health-care workers' understanding of and barriers to palliative care services to Aboriginal children with cancer. J Paediatr Child Health. 2022 Apr 30. doi: 10.1111/jpc.16000.

Devery K, Winsall M, Rawlings D. Teams and continuity of end-of-life care in hospitals: managing differences of opinion. BMJ Open Quality 2022 Apr 20;11:e001724. doi: 10.1136/bmjoq-2021-001724.

Rawlings D, Winsall M, Yin H, Devery K. "Holding back my own emotions": Evaluation of an online education module in pediatric end-of-life care. J Child Health Care. 2022 Apr 5:13674935221076214. doi: 10.1177/13674935221076214. Epub ahead of print.

Vilapakkam Nagarajan S, Lewis V, Halcomb EJ, Rhee J, Tieman J, Clayton JM. Australian general practice experiences of implementing a structured approach to initiating advance care planning and palliative care: a qualitative study. BMJ Open. 2022 Mar 28;12(3):e057184. doi: 10.1136/bmjopen-2021-057184.

Clark J, Chang S, Kinchin I, Ferreira D, Kochovska S, Morgan D, Poulos LM, Johnson MJ, Ekström M, Currow DC. Lower workforce participation is associated with more severe persisting breathlessness. BMC Pulm Med. 2022 Mar 18;22(1):93. doi: 10.1186/s12890-022-01861-y. 

Pilegaard MS, la Cour K, Baldursdóttir F, Morgan D, Oestergaard LG, Brandt Å. Assistive devices among people living at home with advanced cancer: Use, non-use and who have unmet needs for assistive devices? Eur J Cancer Care (Engl). 2022 Mar 14. doi: 10.1111/ecc.13572.

Rawlings D, Miller-Lewis L, Tieman J. Impact of the COVID-19 Pandemic on Funerals: Experiences of Participants in the 2020 Dying2Learn Massive Open Online Course. Omega (Westport). 2022 Feb 24.302228221075283. doi: 10.1177/00302228221075283.

Morgan DD, Taylor RR, Ivy M, George S, Farrow C, Lee V. Contemporary occupational priorities at the end of life mapped against Model of Human Occupation constructs: A scoping review. Aust Occup Ther J. 2022 Feb 23. doi: 10.1111/1440-1630.12792.

Nagarajan SV, Lewis V, Halcomb E, Rhee J, Morton RL, Mitchell GK, Tieman J, Phillips JL, Detering K, Gavin J, Clayton JM. Barriers and facilitators to nurse-led advance care planning and palliative care practice change in primary healthcare: a qualitative study. Aust J Prim Health. 2022 Feb 8. doi: 10.1071/PY21081.

Chakraborty A, Oguoma VM, Coffee NT, Markey P, Chong A, Cargo M, Daniel M. Association of Built Environmental Features with Rates of Infectious Diseases in Remote Indigenous Communities in the Northern Territory, Australia. Healthcare (Basel). 2022 Jan 17;10(1):173. doi: 10.3390/healthcare10010173

Deb Rawlings, Lauren Miller-Lewis & Jennifer Tieman (2022). ‘It’s like a wedding planner’: Dying2Learn Massive Open Online Course participants views of the Death Doula role, Progress in Palliative Care, DOI: 10.1080/09699260.2021.2021371

Cheyne S, Lindley RI, Smallwood N, Tendal B, Chapman M, Fraile Navarro D, Good PD, Jenkin P, McDonald S, Morgan D, Murano M, Millard T, Naganathan V, Srikanth V, Tuffin P, Vogel J, White H, Chakraborty SP, Whiting E, William L, Yates PM, Callary M, Elliott J, Agar MR; National COVID-19 Clinical Evidence Taskforce. Care of older people and people requiring palliative care with COVID-19: guidance from the Australian National COVID-19 Clinical Evidence Taskforce. Med J Aust. 2021 Dec 5. doi: 10.5694/mja2.51353. Epub ahead of print.

Morgan DD, Litster C, Winsall M. et al. “It’s given me confidence”: A pragmatic qualitative evaluation exploring the perceived benefits of online end‐of‐life education on clinical care. BMC Palliat Care 20, 57 (2021). https://doi.org/10.1186/s12904-021-00753-y

Kochovska S, Agar MR, Phillips JL, et al. Applying evidence-based symptomatic treatments from other clinical disciplines to palliative care. Palliat Med. 2021;35(3):458-460. doi:10.1177/0269216321996984

Maeder A, Tieman J, Naveda B, Champion S, & Agnew T. (2021). Automated topic analysis for restricted scope health corpora: methodology and comparison with human performance. In T. X. Bui (Ed.), Proceedings of the 54th Annual Hawaii International Conference on System Sciences, HICSS 2021: January 4-8, 2021 (pp. 775-781). (Proceedings of the Annual Hawaii International Conference on System Sciences). University of Hawai'i at Manoa. https://doi.org/10.24251/HICSS.2021.095

Tieman J, Lewis V. Benefits of structured engagement with target audiences of a health website: Study design for a multi-case study. Healthcare (Basel). 2021;9(5):600. Published 2021 May 18. doi:10.3390/healthcare9050600

Rawlings D, Davies G, Tieman J. Compassionate communities – What does this mean for roles such as a death doula in end-of-life care? Public Health. 2021;194:167-169. doi:10.1016/j.puhe.2021.02.038

Taylor A, Tieman J, & Maeder A. (2021). Digital Innovations for Aged Care: Impacts in the COVID-19 Pandemic. In M. Merolli, C. Bain, & L. K. Schaper (Eds.), Healthier Lives, Digitally Enabled - Selected Papers from the Digital Health Institute Summit 2020: Selected Papers from the Digital Health Institute Summit 2020 (Vol. 276, pp. 51-57). (Studies in Health Technology and Informatics; Vol. 276). IOS PRESS. https://doi.org/10.3233/SHTI210010

Rawlings D, Litster C, Miller-Lewis L, Tieman J, Swetenham K. End-of-life doulas: A qualitative analysis of interviews with Australian and International death doulas on their role. Health Soc Care Community. 2021;29(2):574-587. doi:10.1111/hsc.13120

To THM, Currow DC, Swetenham K, Morgan DD, Tieman J. How Can Activity Monitors Be Used in Palliative Care Patients? J Palliat Med. 2019;22(7):830-832. doi:10.1089/jpm.2018.0414

Vandersman P, Perimal-Lewis L, & Tieman J. (2021). Is There an App for That? A Scoping Review of Apps for Care Workers in the Aged Care Sector. In A. J. Maeder, C. Higa, M. E. L. van den Berg, & C. Gough (Eds.), Telehealth Innovations in Remote Healthcare Services Delivery : Global Telehealth 2020 (pp. 124-134). (Studies in Health Technology and Informatics; Vol. 277). IOS Press BV. https://doi.org/10.3233/SHTI210035

Damarell RA, Morgan DD, Tieman JJ, & Healey DF. (2021). Multimorbidity through the lens of life-limiting illness: How helpful are Australian clinical practice guidelines to its management in primary care? Australian journal of primary health, 27(2), 122-129. https://doi.org/10.1071/PY20164

Rawlings D, Winsall M, Miller-Lewi L, & Tieman J. (2021). Natural Death Versus Known Date-Of-Death: A Qualitative Study of Views on Voluntary Assisted Dying in an Online Course About Death. Omega (United States). https://doi.org/10.1177/00302228211008771

Mills J, Fox J, Damarell . et al. Palliative care providers’ use of digital health and perspectives on technological innovation: a national study. BMC Palliat Care 20, 124 (2021). https://doi.org/10.1186/s12904-021-00822-2

Tait P, Gravier S, Erny-Albrecht K, & Tieman J. (2019).Symptom Management in the Terminal Phase: Turning Challenges into Opportunities. Australasian Journal on Ageing, 38(S1), 61-62. [P58]. https://doi.org/10.1111/ajag.12661

Philip J, Collins A, Phillips J, et al. The development of the Australian National Palliative Care Clinical Studies Collaborative “Integrating qualitative research into clinical trials framework”. J Palliat Med. 2021;24(3):331-337. doi:10.1089/jpm.2020.0480

Dolgoy N, Driga A, Brose JM. The Essential Role of Occupational Therapy to Address Functional Needs of Individuals Living with Advanced Chronic Cancers. Semin Oncol Nurs. 2021;37(4):151172. doi:10.1016/j.soncn.2021.151172

Keenan AJ, Tsourtos G, Tieman J. The value of applying ethical principles in telehealth practices: Systematic review. J Med Internet Res. 2021;23(3):e25698. Published 2021 Mar 30. doi:10.2196/25698

Rawlings D, Winsall M, Yin H, Devery K. What is a compassionate response in the emergency department? Learner evaluation of an End-of-Life Essentials online education module [published online ahead of print, 2021 May 5]. Emerg Med Australas. 2021;10.1111/1742-6723.13776. doi:10.1111/1742-6723.13776

Tait P, Chakraborty A, Jones K, & Tieman J. (2021). What Is the Community Pharmacists’ Role in Supporting Older Australians with Palliative Care Needs? Healthcare (Switzerland), 9(5), [489]. https://doi.org/10.3390/healthcare9050489

Miller-Lewis LR, Lewis TW, Tieman J, Rawlings D, Parker D, Sanderson CR. Words describing feelings about death: A comparison of sentiment for self and others and changes over time. PLoS One. 2021;16(1):e0242848. Published 2021 Jan 6. doi:10.1371/journal.pone.0242848